Last Tuesday the 13th (officially 12 days before Christmas), I took Georgia to Riverton Hospital for a swallow study. She failed! She aspirated on regular formula and thickened formula but did fine on honey thick. I wasn't surprised that she didn't do well. She wasn't very hungry. Darryl fed her 2 hours before. And she literally was asleep in the chair right before the test started. The speech pathologist and the doctor would not let us redo the test. They wouldn't let us go home and they admitted Georgia to the hospital for an NG tube.
They wanted to keep us for 48 hours. I have no idea why. They said they wanted to see how she tolerated her feeds. She was on continuous feed all night but they had her on 60 mLs/hour which was way to high for her. She freaked out. I told the nurses that was way too much but they said that was what the doctor ordered. The good thing was that we were able to get her shunt checked to make sure it was still functioning well. And we were able to get the EEG done that we had scheduled for later in the week.
Georgia was really happy despite everything she was being put through.
She did have a big seizure that required Diastat, of course not during her EEG. In fact, she had a seizure literally seconds before they turned the EEG machine on and then didn't have another one. Little turkey!
She did have a big seizure that required Diastat, of course not during her EEG. In fact, she had a seizure literally seconds before they turned the EEG machine on and then didn't have another one. Little turkey!
I was able to talk my way out of there after about 24 hours.
We had to prove that we could take care of her with a NG tube. Which is stupid because as a newborn she had an NG tube. They even made me prove I knew how to make a bottle. Ya, I've made thousands of bottles and I had to make one in front of a nurse to prove I wasn't a moron. Stupid! The weird thing is that they let me feed her thickened bottles of formula and baby food. I didn't argue with them because I just wanted to go home but it makes no sense that if she was aspirating (and that's why we were admitted in the first place) that they still let me feed her.
It seems their main concern is weight gain (she's lost 3 pounds in the last year), which is ridiculous because she weighs almost the same as Eden. So they want me to feed her 1100 calories in a day. She was on continuous feeds at night and can eat food during the day. I think that's way too much for her and she'll blow up like a balloon. We'll see. I just don't see why she needs a tube for this.
0 comments:
Post a Comment